The goal of this briefing is to highlight the gaps of the broken system but also for Congressman Butterfield to announce his intent of introducing the "Rare Cancer Awareness, Research and Treatment Act". I've attached a brief summary of the ACT in case you are interested in learning more - but it includes a major increase in funding for rare cancer research and mandating molecular diagnostics.

We have a fantastic line-up of speakers including:
· David Hysong, Founder, Patient and CEO of SHEPHERD
· Jace Ward, Diffuse Intrinsic Pontine Glioma (DIPG) cancer patient, currently undergoing experimental treatment at Stanford.
· Candace Granberg, MD, Pediatric Urologist, Mayo Clinic
· Reed Jobs, Managing Director of Health, Emerson Collective
· Congressman Butterfield [D-NC], Co-Chair of the Rare Disease Caucus and former Chair of the Congressional Black Caucus
· Greg Simon, Former Director of the Cancer Moonshot
· Brandliee Schafran, Director of Advocacy, SHEPHERD Foundation